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Approvals Programs in NET cancer Resource page
ALL4NETS listings for support groups
Includes an extensive list of online as well as physical support groups.
Caring for Carcinoid Foundation Listings for support groups
Their list is shorter than the other two.
Carcinoid Cancer Foundation listings for support groups
The most extensive listings of the three. They also have extensive commentaries on the majority of the groups they have posted.
This is a support group for pheochromocytoma, a particular type of NET that has an impact on blood pressure.
The following support groups exist on Facebook.
I have personally looked at all of these and found them potentially very useful for patients and their families. They are private groups and can only be joined by people with carcinoid/NETs and caregivers.
Carcinoid Cancer Awareness Network
Carcinoid Neuroendocrine Cancer Awareness
Zebra Zone–this is a private group. You can join it by contacting the page administrator, Katie Adams, by pm on Facebook.
This last group is specifically for people with Carcinoid/NETs lung cancer
(If you have listings for a NET or CS support group–or are an individual group that would like a listing here, contact me at the address below.)
Foundations Blogs Videos Basic Reading Medical Reading Trials
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