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Programs in NET Cancer and Carcinoid tumors
Some cancer centers have established specific programs aimed at research and treatment of NET cancer and Carcinoid tumors. There are also doctors with more experience in dealing with NET cancer than others. A link to the Carcinoid Cancer Foundation‘s list of individual doctors is also in this section.
Walking with Jane makes no claims with regard to the performance of any of these programs. We endorse no doctor or program and nothing here should be taken as a recommendation of a specific doctor, program, or treatment. Treatment decisions are for you to decide in consultation with your doctor. We merely try to provide the best information we can find. Remember, the author is not a doctor and does not claim to be.
Program in Neuroendocrine and Carcinoid Tumors at the Dana-Farber Cancer Institute
Located in Boston, Massachusetts. This program is under the direction of Dr. Matthew Kulke. He and his group were responsible for the first new drugs in 20 years approved by the FDA to treat NET cancer. This program is supported, in small part, by the Walking with Jane Dybowski Fund for Neuroendocrine Cancer.
Neuroendocrine Tumor Program at Ochsner Medical Center
Affiliated with LSU in Kenner, LA, this is one of the premier research centers for NET cancer and carcinoid syndrome.
Mount Sinai Hospital Center for Carcinoid and Neuroendocrine Tumors
Home of the father of NET cancer and carcinoid research, Dr. Richard Warner, this is perhaps the oldest program in the US with a focus on NET cancer.
Johns Hopkins Medicine Liver Tumor Center
Johns Hopkins has made some important discoveries recently about NET cancer.
Vanderbilt-Ingram Cancer Center Carcinoid Tumors Team
Located in Nashville, TN, this is another NCI institute, as are most of the other institutions listed here. They have a number of ongoing trials.
H. Lee Moffitt Cancer Center & Research Institute
Located in Tampa, FL, Moffitt is one of the NCI National Institutes for cancer treatment and research.
Carcinoid and Neuroendocrine Tumor Program at Cedars-Sinai
Located in Los Angeles, California, this program is under the direction of Dr. Run Yu. He has solid NET cancer credentials.
Located in Houston, Texas–and with a number of satellite campuses–M.D. Anderson is involved with the PRRT trials and is looking at the molecular basis of NET cancers.
The Nebraska Medical Center Treatment and Research
These folks are at the center of liver re-sectioning research and treatment for NET cancer metastases.
Neuroendocrine Tumor Center at Mercy Medical
This center is located in Baltimore, Maryland. It is headed by Dr. Sanjay Jagannath, one of the leaders in pancreatic NET cancer research and treatment.
University of Kentucky Carcinoid and Neuroendocrine Cancer Team
This is the new home of Dr. Edward Wolin, who was formerly at Cedar-Sinai in California.
Memorial Sloan-Kettering Cancer Center
Located in New York, Memorial Sloan-Kettering authors some interesting research as well as treating carcinoid/NETs patients.
Individual doctors with experience with NET cancers
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What about Dr. Fine at NY Presbyterian?
Dear Claudia,
We don’t recommend particular doctors. We don’t have the expertise for that.
The programs listed here are institutions who have made substantial commitments to research on NETs/carcinoid by setting up programs that involve multiple researchers at their institutions. The list has not been updated in a few months, but when we hear of a new program, we post it. We make no recommendation of particular programs or their quality. Again, we lack the expertise to do so.
The Carcinoid Cancer Foundation (carcinoid.org) maintains a list of individual doctors who work on this particular form of cancer. Again, they do not make recommendations about particular doctors. Their list is also, like ours, based largely on doctors who tell them they have knowledge of the disease or that they otherwise know work on the disease.
A decision about what doctor to see is one only you can make in consultation with your own primary care doctor.
I wish we could do more than that, but legally–and ethically–we can’t. We just don’t have the knowledge or experience to do that. We are not doctors and our knowledge of them is limited to our personal experience with the doctor who treated either us or our loved ones.
–Walking with Jane
Dear Claudia,
Today’s news piece talks about Fine’s work at NYP. Here is the link: https://walkingwithjane.org/2014/03/18/fine-delivers-exciting-news-conference/
Walking with Jane