Great NET cancer info site
It is not often I discover a NET cancer site that I tout in one of these posts but cancer.net has created such a site. Their section on NET cancer is superb–and clearly aimed at a lay audience. If you are new to NET cancer, whether patient, caregiver, or primary care physician, I strongly suggest you make their site your next stop. It is beautifully organized, well-written, and creates easy access to the basics of the disease. It is the site I wish existed at the time of Jane’s initial diagnosis.
…the site I wish existed at the time of Jane’s initial diagnosis
Part of the set-up is the most comprehensive list of symptoms addressing several different forms of NET cancer I have seen. Again, the language used is easy to understand. I cannot say enough nice things about what they have done here.
Latest WWJ NET cancer shirt designed
I completed the design on the front of our Marathon Walk T-shirt earlier today. These shirts will not be offered for sale but will go to members of our Caring for Carcinoid Walking with Jane Jimmy Fund Marathon Walk team and those who have made a $100 donation to the team as a whole or an equal donation to support an individual team member’s Walk.
The design is pretty striking
All funds our team raises will go to the Walking with Jane Dybowski Fund for Neuroendocrine at the Dana-Farber Cancer Institute to support research and education on NET Cancer.
The design is pretty striking, if I do say so myself. It will be printed on our traditional ash grey t-shirt.
Site revision underway
Work has begun on the latest major update of this website. The largest part of that revision will be the addition of an easily accessible archive of these posts, something a number of people have asked for the last few months. Initially, the archive will only be by date, but I hope to add categories and tags to the mix fairly soon as well. Carissa Broadbent will be handling the major lifting on that project.
People facing NET cancer already have enough physical stress symptoms in their lives
She also has a variety of lesser tweaks in mind we hope will make people’s time here a better one. People facing NET cancer already have enough stress in their lives without having to fight with websites they have turned to for information. We have tried to keep things simple here. If you have ideas that might help with that, feel free to let us know.
I’ve also made some changes to the visual design of these posts in recent days. I will continue to try new things to make things more visually appealing.
NET cancer plan needs ad agency help
We are also looking for an ad agency to help us come up with a name and marketing materials for a fundraiser we are trying to put together for NET Cancer Awareness Day on a pro bono basis. While the short-term plan is to start in South Coastal Massachusetts, the long-term goal is to create something with national reach. If we are ever going to find the amount of money we need to really take out NET cancer we have to get beyond my friends, neighbors and acquaintances.
…we have to get beyond my friends, neighbors and acquaintances
If you know anyone with this background who could help, let us know at walkingwithjane@gmail.com.
Marathon Walk Update
My unofficial total so far is $5587.40. I reset my goal numbers this morning to $7500 on the Jimmy Fund site. With the walk date–September 9–now under three weeks away, we really need your help. My eventual goal is $10,000. Last year, I raised an even $4500 on the Walk.
We also need more team members
The Caring for Carcinoid Walking with Jane team–with what I mailed this morning and the $200 that arrived in today’s mail–sits at just under $10,000. That puts us just over the total Walking with Jane raised for the Greater Fall River Relay for Life this year, but well off the $35,000 Caring for Carcinoid raised last year for this event. Without a major push over the next couple of weeks we will be unlikely to reach even the $25,000 goal we set for this year.
We also need more team members. If you can walk five miles or more and raise $300, we want you to join us. In addition to our shirt described above, you will also receive an official Jimmy Fund Marathon Walk t-shirt–and done something very useful to others with a Sunday morning and afternoon. Please join us.
