The NET Alliance has created a number of very professional looking videos on neuroendocrine cancer that explain the disease and what to look for in layperson’s terms very well. The entire series is available on YouTube and I will eventually link to all of those from this site as time allows.

I chose the video on Irritable Bowel Syndrome symptoms that may indicate a Neuroendocrine Tumor because it describes exactly the symptoms Jane had for years. If we had simply known then what I know now Jane might still be with us. Unfortunately, the availabiltiy of this kind of information even two years ago was very slender.

If you know anyone with IBS you need to make sure you share this short video–just under 12 minutes–so they can talk to their doctors about the possibility they have NEC. Very early detection is the only way to beat this disease.