Two videos from the Stanford Patient Education Conference

The Caring for Carcinoid Foundation sponsored a patient education conference at Stanford University on September 10. Stanford has begun uploading videos of specific sessions at that conference to YouTube. Over the next few days I am going to view those videos and begin posting links to them here.

The first of these videos is a primer on neuroendocrine cancer. The session runs just over 15 minutes and does a very good job of outlining the basics of the disease.

The second video I am posting today from that conference is a panel discussion on the psychosocial impact of the disease on peoples’ lives and their relationships with others. It runs about 42 minutes.

Both these videos will take you into the world of neuroendocrine patients and their caregivers. When you are finished watching them you will have a better understanding of what Jane and I went through last year–though to totally understand it you have to have the disease, I suspect. And what a caregiver goes through can only be understood once you have been through that experience.

 

I will eventually post these in the resources page. I am thinking we should have a separate page just of links to videos. Something to ponder.

I wish neither of those experiences on any of you.