Friday was the 2011 Focus on Neuroendocrine Tumors Conference in Philadelphia.
The link below will take you to a page that will link you to a video of the entire conference and all the presentations. In addition you can access the PowerPoints for each of the presentations at the conference. When you get to the site just click on the button to view the conference or on one of the buttons below that for each pdf.
The last presentation in the list is about how to become a barking zebra. It is by a patient and is a good guide to how to become the kind of actively engaged patient you have to be to fight a disease many doctors have not even heard of.
The slides in some of the other presentations provide an outline of the material but are harder to follow without the actual presentation.
I will also post this link in the resources section of walkingwithjane.org in the next day or two.
The conference was sponsored by the Caring for Carcinoid Foundation and Penn Medicine.
