Support Groups

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Support Groups

ALL4NETS listings for support groups

Includes an extensive list of online as well as physical support groups.

Caring for Carcinoid Foundation Listings for support groups

Their list is shorter than the other two.

Carcinoid Cancer Foundation listings for support groups

The most extensive listings of the three. They also have extensive commentaries on the majority of the groups they have posted.

Pheo paratroopers

This is a support group for pheochromocytoma, a particular type of NET that has an impact on blood pressure.

The following support groups exist on Facebook.

I have personally looked at all of these and found them potentially very useful for patients and their families. They are private groups and can only be joined by people with carcinoid/NETs and caregivers.

Carcinoid Cancer Awareness Network

Carcinoid Coffee Cafe 

Carcinoid Neuroendocrine Cancer Awareness

Zebra Zone–this is a private group. You can join it by contacting the page administrator, Katie Adams, by pm on Facebook.

ZEBRA Awareness Global NETS

Lovable Lungnoids

This last group is specifically for people with Carcinoid/NETs lung cancer

(If you have listings for a NET or CS  support group–or are an individual group that would like a listing here, contact me at the address below.)

 Foundations  Blogs   Videos   Basic Reading   Medical Reading   Trials    

Approvals    Resource page