Redesign time: What are your thoughts?

Redesign long overdue Just about 6.5 years ago we started the design of walkingwithjane.org. At the time, it was a state-of-the-art design. We tinkered with it over the first year or so, but content reigned over all else in terms of effort. We had a particular set of goals in mind, and designed accordingly. We […]

Read the full post... | Posted by walking with jane on January 17, 2018

One hate fuels another

Why I ride I have to be honest: There are two things I really hate about the work I do with NET cancer. The first is reading the daily notices about who has died overnight. I’ve reached a point that I know most of them. I’ve read their posts in support groups, met them at […]

Read the full post... | Posted by walking with jane on January 15, 2018

Seven years: an ending and a beginning

The cemetery I drove to the cemetery this morning. The ground was covered in a thin coat of snow and there was a touch of wind. It was cold, but I’d dressed for it. I stood at Jane’s grave. I said some things to her stone–private things and not so private things. The things one […]

Read the full post... | Posted by walking with jane on December 10, 2017

Time to change direction and focus

A year of change My friend John died July 1. August 8, I had minor surgery to remove a basal cell skin cancer from my nose. I fought off a cold in September, another in October, the flu in early November and an intestinal issue last week. This weekend marks the seventh anniversary of Jane’s […]

Read the full post... | Posted by walking with jane on December 6, 2017

Giving Tuesday:give more than thoughts & prayers

Shopping thoughts Black Friday, people shopped. Their thoughts were focussed on the bargains to be had on gifts for loved ones. My thoughts, too, drifted to the bargains. I had tools to replace and some lights I wanted that went on sale. …each of us can make a difference. Small Business Saturday found people with […]

Read the full post... | Posted by walking with jane on November 28, 2017

Thankful? Perhaps. Terrified? Absolutely

Thankful for what is I have much to be thankful for: I have cupboards stocked with food, I have a roof over my head—a heated home with comfortable chairs and a warm bed to sleep in. I have clothes to wear at every season of the year. I have friends who would walk to the […]

Read the full post... | Posted by walking with jane on November 27, 2017

Money remains a central NET cancer problem

Money remains too scarce in 2017 Money was a problem in 2010. The amount researchers had to spend amounted to less than we spent on Jane’s treatment in the four months from her diagnosis to her death. Jane telling her doctors to study her the best they could, in some ways, doubled the research money […]

Read the full post... | Posted by walking with jane on November 20, 2017

Birthday takes me back seven years

Jane’s birthday present “I got a new heart for my birthday.” Jane said that cheerfully seven years ago today. She had gotten out of bed, briefly, for a short walk down the hall. She’d begun doing other pieces of physical therapy. We were preparing to move her to the step-down unit as soon as they […]

Read the full post... | Posted by walking with jane on November 17, 2017

Public awareness key to increased funding

Public awareness strategies key I spent yesterday in Boston in a variety of meetings about NET cancer fundraising and awareness. My morning meeting involved discussions about a potential NET cancer awareness event in the city sometime this spring. We talked about both an awareness walk and doing a series of “table” events in various locations […]

Read the full post... | Posted by walking with jane on November 16, 2017

Landscape has not changed enough

Brighter landscape in many areas The NET cancer landscape has changed dramatically since 2010, as I wrote earlier this month. Patients who came to this disease before that year no doubt have seen even larger changes. But newer patients may well look back seven years from now and see today as just as bleak as […]

Read the full post... | Posted by walking with jane on November 14, 2017