Apologies for a long time absent

Absent realities Dear friends, First and foremost, my apologies to all of you. I’ve been absent most of this year, for reasons I’ll share in a minute. I hope the rest of this year will be better. The rebuild promised in my last post has not happened, nor have I managed a single update since […]

Read the full post... | Posted by walking with jane on September 14, 2017

Reconstruction beginning on WWJ website

Over the next few days, you may experience some difficulties with this website as we begin doing some reorganizing. The News/Blog connections should be fine, as nothing will change there. However, using other sections of the website may get a bit choppy at times as some things may move to other sections, other links vanish, […]

Read the full post... | Posted by walking with jane on January 11, 2017

Remember the day where the pain resides

I remember to forget forgetting I lost track of the date over the weekend. It happens when you really don’t have a good reason to remember. But I don’t really need a calendar to find the tenth of any month. All I have to do is look at my behavior and how I’m feeling. My subconscious […]

Read the full post... | Posted by walking with jane on January 10, 2017

Mission remains: cure NET cancer now

Original mission I had a very specific mission and role in mind for the Walking with Jane when we started. No one, beyond those afflicted with the disease, seemed to know the disease existed. Basic research lagged for lack of money. Too many patients were stuck with doctors supervising their care who knew less than […]

Read the full post... | Posted by walking with jane on January 3, 2017

End of year report for 2016 for Walking with Jane

A year of ups and downs 2016 was a busy year, both for Walking with Jane and for me personally. As an organization, we made significant progress on a number of fronts, but lagged behind where I would like us to be in other areas. As an individual, I continued to struggle with my personal […]

Read the full post... | Posted by walking with jane on January 2, 2017

Nurture heart, nurture patients, nurture science

A bit of ivy We lost one houseplant when Jane was in the hospital. It was an ivy plant Jane had trained to a topiary mold in the shape of a heart. She started it our first year of marriage. Its death marked her death and the shattering of my own heart. Our job is […]

Read the full post... | Posted by walking with jane on December 30, 2016

Day to reflect on more than death

A lost day The moment of Jane’s death six years ago stands barely an hour from now as I write this. I’ve had a miserable day, as I should have expected. I had hoped to make cookies this afternoon and do the prep work for decorating the tree tomorrow. But the afternoon dissolved into mindlessness. […]

Read the full post... | Posted by walking with jane on December 10, 2016

Challenge ends–but the work continues

Where we stand This post finishes the 30 Day Walking with Jane NET Cancer Awareness Month Challenge. I hope you’ve found things in it of use. I’ve tried to deal with subjects that matter to both patients and caregivers. I’ve tried to create hope in what is too often a bleak landscape. But I’ve tried […]

Read the full post... | Posted by walking with jane on December 1, 2016

Self-care for caregivers–Advice Part 6

Why self-care matters Self-care is the last thing most caregivers want to hear about. They focus on the patient and their needs. Taking even a minute from that work can–and does–feel like a betrayal. Sometimes, even the patient sees it that way. There were times Jane certainly did. …we will laugh again… But we lay […]

Read the full post... | Posted by walking with jane on November 30, 2016

Doctor visit prep and execution–Advice Part 5

Preparation first key Any doctor visit is taxing–even when you are in good health. At least they were for Jane and me. And once you have a cancer diagnosis and appointments that are not ten minutes from your door, things get worse. The key to easing some of that stress comes down to prior preparation […]

Read the full post... | Posted by walking with jane on November 29, 2016